         |
NIH Objectives
| 1 | 2 | 3 | |
| Goal |
To
support effective dissemination, communication, and utilization of HIV-related
research information to researchers, health care providers, HIV-related
service providers, HIV-positive individuals and their advocates, and all
constituencies of the NIH. |
| Objective
#1 |
Support
the effective dissemination and utilization of HIV/AIDS information to
all constituent communities of NIH.
|
|
Description
|
Effective
Communication: Exchange of information about basic, clinical, and behavioral
HIV/AIDS research findings is essential to progress in research and ultimately
to improved care and treatment for HIV-infected people. The traditional
methods of reporting ongoing studies and research results in peer-reviewed
journals and at scientific meetings may be slow and may reach only limited
audiences. Health educators, health care providers, and patients, particularly
those in underserved communities, need to know the results of clinical and
prevention intervention studies, state-of-the-art recommendations, and the
most up-to-date standards of health care. This information should be timely,
include discussion of the potential implications of research findings for
patient care, and should be in a form that audiences can use. The latest
computer and information technologies should be exploited whenever appropriate.
The findings resulting from communications research should be incorporated
into the strategies to carry out this objective. |
|
Action
Steps
|
- Rapidly
disseminate new research findings with information on their potential
implications on prevention, care, and treatment of HIV-infected individuals.
- Expand
access to current treatment and patient management guidelines including
state-of-the-art care and information on clinical trials using multiple
technologies such as, but not limited to, on-line access AIDSTRIALS
and AIDSDRUGS data bases and voice access (HIV/AIDS Treatment Information
Service and the AIDS Clinical Trials Information Service).
- Improve
current and develop and evaluate new techniques for the two-way communication
of information to scientific and lay audiences, particularly to hard-to-reach
populations.
- Support
community groups to access HIV/AIDS information resources in their development
of educational materials.
- Develop
and disseminate educational information.
- Enhance
understanding of HIV and basic and clinical research processes by health
care providers, community-based HIV/AIDS service organizations, and
persons with HIV/AIDS.
- Develop
mechanisms for rapidly disseminating information on research in progress
to the research community in order to increase collaboration, reduce
duplication of effort, and enhance the discovery process.
- Enhance
communication with the pharmaceutical industry concerning research on
the development of therapeutics and vaccines.
- Communicate
and exchange information internationally on topics such as prevention
and treatment information, patient management guidelines, and research
results that impact on the care of HIV-infected individuals, particularly
in developing countries.
- Support
the exchange of basic, clinical, and behavioral research information
at community, regional, national, and international conferences and
workshops.
- Provide
on-line, in advance when possible, the full text of abstracts and other
information from scientific meetings.
- Collect,
archive, and make available existing data from NIH-supported basic and
applied research for secondary data analysis.
- Disseminate
widely information concerning specimen repositories, including existing
repositories, specimens available and relevant information concerning
cohorts, contact people, and the process for obtaining access to samples.
- Evaluate
the effectiveness of communication efforts by appropriate means, including
obtaining feedback from target audience members and information dissemination
intermediaries.
|
| Objective
#2 |
Support
research to identify existing gaps in communications approaches, identify
existing strategies that are effective, and develop and test new and innovative
communication strategies that will improve access to and use of state-of-the-art
HIV information by all relevant audiences. |
|
Description
|
Research:
Past assessments have identified important information needs and barriers
for relevant target audiences such as health care providers, service providers,
people with HIV and their advocates, at-risk populations, basic and applied
researchers, and the general public, and although significant communications
efforts have been initiated, some communities still may not be (1) receiving
needed information, (2) receiving information in a context appropriate for
the audience, (3) comprehending the information, or (4) translating the
information into action. New approaches are needed to ensure that the communication
of information resulting from research is optimally effective. |
|
Action
Steps
|
- Develop,
test and evaluate innovative strategies for effectively reaching scientific
audiences with relevant HIV information.
- Investigate
how and under what circumstances different communication and dissemination
strategies influence the adoption of scientifically based HIV behavior
change interventions and clinical practice activities in various populations.
- Identify
obstacles to information dissemination and develop and test possible
ways to overcome these obstacles.
- Assess
the information needs of, and sources of information used by, various
audiences, including biomedical and behavioral research communities,
health care providers, service providers, people with HIV and their
advocates, at-risk populations, and the general public.
- Investigate
the adoption of new technologies for disseminating basic and applied
research findings.
- Develop,
improve, and evaluate the interface between human factors and emerging
technologies for information exchange in HIV/AIDS.
|
| Objective
#3 |
Develop,
implement, and evaluate mechanisms that promote coordination and collaboration
on all current HIV/AIDS communication activities among NIH ICDs and with
other Federal and non-Federal groups. |
|
Description
|
Coordination:
The scientific and lay communities look to the NIH as a central source of
information on HIV/AIDS. Since multiple NIH ICDs disseminate HIV/AIDS information
to these communities, coordination of efforts is essential. In order to
make more effective use of limited Federal dollars, increase efficiency,
make better use of new technologies, and ensure credibility with the scientific
and lay communities, there must be more collaboration and better coordination
of communication activities within the NIH and between the NIH and other
Federal Agencies, community groups, universities, and the private sector. |
|
Action
Steps
|
- Build
ongoing partnerships between community-based organizations and basic,
clinical, and behavioral researchers through both the intramural and
extramural research programs to encourage exchange of information and
experience throughout the research process to enhance research, treatment,
and prevention efforts.
- For
example, this could be accomplished through requirements in appropriate
funding proposals to establish appropriate communication and coordination.
- Promote
closer interagency collaboration within PHS on information dissemination
programs.
- Coordinate
collaboration among all ICDs in the provision of information about their
clinical trials for HIV/AIDS to the AIDS Clinical Trial Information
Service.
- Maintain
an interface with the Cancer Information Service and PDQ to provide
information on clinical trials for AIDS-related malignancies.
- Support
use of HIV/AIDS resource on the Internet to facilitate domestic (NIH
and non-NIH) and international research collaboration and data sharing.
Continue collaborations with the United Nations/World Health Organization
(WHO) AIDS program, the Pan American Health Organization (PAHO), and
international AIDS agencies or societies to obtain and disseminate information
about international clinical trials.
- Collaborate
with public and health sciences libraries to facilitate community group
access to needed information.
- Work
within DHHS, including HCFA, and with the private sector in the development
of medical standards of care for determining guidelines for reimbursement.
|
|
Resources
|
FY95
|
FY96
|
FY97
|
|
$
16.2 million
|
$
17.9 million
|
$
17.7 million
|
|
Populations
Served
|
All
populations. |
|
Constituency
Involvement
|
Researchers,
clinicians, community and patient representatives, and NIH-affiliated advisory
councils and committees. |
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